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Fur Mama and the Migraine Saga

Living with Chronic Migraine. Loving my five fur babies.

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furmamaandthemigrainesaga

Fur Mama to five fur kids.
Spoonie 🥄 | HSP 🤗
🌻 South Jersey
#ChronicMigraine Warrior 🧠
Blog 👇🏻

Yesterday’s surgery was a success! This year I'v

Yesterday’s surgery was a success! This year I've been searching for the cause of the severe abdominal pain that causes me to pass out on occasion. After all my GI tests came back normal, my gastroenterologist suggested I be evaluated for Endometriosis. Something I had never thought could be the cause of my pain.

After reading other patients' stories, I knew that Endo symptoms could occur all the time and not just caused by the menstrual cycle. After finding a cyst on my ovary, my Gynecologist told me that I absolutely don't need surgery. I told her if there was the slightest chance I would need surgery in the future, I wanted to have the surgery now. She gave me the cards of a generalist and fertility specialist and told me that they would tell me the same thing, I absolutely didn't need surgery. I did my research and found a surgeon I absolutely love.

Fast forward to yesterday; when I woke up in recovery four hours after I fell asleep in the OR, my surgeon said, “Liz, we found a good amount of Endometriosis.” They found extensive Endometriosis in my pelvis and Endometriosis on my colon and diaphragm also. According to the surgeon’s notes, because the Endometriosis was less straightforward than expected, my surgery went an hour over the scheduled OR time.

Moral of the story, advocate for yourself. You know your body best. You deserve doctors who listen to your concerns and believe you.

Because other Endo Warriors have shared their stories, I was able to knowledgeably advocate for myself.

Thanks to everyone for your well wishes. I'm so beyond grateful for all of you. 🤗

#EndoWarrior #DiaphragmaticEndometriosis #BowelEndometriosis #Surgery #MIGS #Laproscopy #EndometriosisExcision #ChronicIllness #Spoonie #InvisibleIllness #ButYouDontLookSick #ChronicMigraine #Migraine #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #CFS #ME #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Health #Anxiety #Migraineur #NotAllDisabilitiesAreVisible #Advocate

It's surgery week! This week was always going to k

It's surgery week! This week was always going to kick my butt no matter what. Admitting I'm struggling is more about getting through this week than being honest with myself. The list of rescue medications that were once effective and now ineffective has increased again. Since I'm off NSAIDs until after my surgery, my only options right now are Tylenol and triptans. Luckily, my doctor squeezed me in for some nerve blocks, and I'm getting Botox this week also. Today my doctor reminded me that I've made a lot of progress, and I'm doing things today that would've been impossible last year. So here's to progress and surviving this week of infinite migraine triggers. 💃🏻

#ProgressNotPerfection #Surgery #NerveBlocks #MigraineTreatment #MigrainePrevention #BotoxForMigraine #FurMama #DogMom #Goldendoodle #GoldendoodlesOfInstagram #ChronicIllness #Spoonie #InvisibleIllness #ButYouDontLookSick #ChronicMigraine #Migraine #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #CFS #ME #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Health #Anxiety #Migraineur #NotAllDisabilitiesAreVisible

Yes, I know. That's why I prepared this very detai

Yes, I know. That's why I prepared this very detailed, color-coded spreadsheet of all my medications. I don't enjoy taking medication. This is the minimum amount of medication it takes for me to function. I'm grateful that medication exists so I can exist. I used to dread going into new doctors’ appointments being the patient with “difficult” medical conditions. Now I have a “I have a lot going on, take me seriously attitude” about it.

💊💊💊💊💊💊💊

#ThirtyAndThriving #SpoonieThings #Advocate #Thirty #Medicine #Medication #Doctor #ChronicIllness #Spoonie #InvisibleIllness #ButYouDontLookSick #ChronicMigraine #Migraine #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #CFS #ME #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Health #Anxiety #Migraineur #NotAllDisabilitiesAreVisible

Since June 29th is Chronic Migraine Awareness Day,

Since June 29th is Chronic Migraine Awareness Day, I wanted to shine a light on what you don't see behind closed doors.

After finishing the steroid taper and successfully doubling my Ketamine dose over the last two months, I went a week without taking migraine meds. Then, the nagging, constant migraine returned. I've spent a lot of time feeling frustrated that despite being on every treatment, trying old treatments, being on every med, and trying old meds, I am still having migraine attacks that aren't responding to meds.

I want to cry all the time, but I've trained my tear ducts not to produce tears to protect my migraine brain. It's more like an internal crying. I've resisted the urge to panic message my Neurologist wanting to change up my preventative or complain about my Botox being scheduled three weeks late.

“Trust the process” keeps coming to mind. I've been here before. Honestly, I'll probably be here again. I'm lucky that I have room to increase the frequency of my treatments and that I have doctors on my team who want to help me. I'll keep trying everything until I find the right combination of treatments.

Every time I see the doctor that does my acupuncture, she says, “Yeah, migraines are difficult. It turns out you need your brain for everything.” 🧠

#TrustTheProcess #ChronicMigraineAwarenessDay #ChronicMigraineAwareness #MHAM #MHAM2021 #MigraineAwarenessMonth #Medication #Ketamine #MigraineTreatment #MigrainePrevention #ChronicIllness #Spoonie #InvisibleIllness #ButYouDontLookSick #ChronicMigraine #Migraine #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #CFS #ME #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Health #Migraineur #NotAllDisabilitiesAreVisible

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