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Fur Mama and the Migraine Saga

Living with Chronic Migraine. Loving my five fur babies.

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furmamaandthemigrainesaga

Fur Mama to five fur kids.
Spoonie 🥄 | HSP 🤗
🌻 South Jersey
#ChronicMigraine Warrior 🧠
Blog 👇🏻

What do you do when you’re at the extreme end of

What do you do when you’re at the extreme end of the spectrum of “difficult migraine” patients, and even the most aggressive treatment options aren’t helping? The truth is, I don’t know. Doctors don’t know. We will keep trying until something works.

Even after twice a week 90 minute Ketamine infusions and nerve blocks for three weeks, I’m still having moderate to severe constant pain. When we did this treatment protocol last year, it changed my life, and I felt like a whole new person. So now my whole team is scratching their heads.

I left my Botox appointment this week down one preventative and on three more. My Neurologist’s current theory is my migraine stubbornness might be caused by my POTS. So hopefully, medication to raise my blood pressure might help. 🤷🏼‍♀️ Maybe. Hopefully. 🙏🏻

I’m also starting Qulipta soon. It’s the newest FDA approved CGRP preventative. I’m pretty excited that it’s an Abbvie drug because they handle the prior authorizations in house, and I don’t have to do the normal dancing between my insurance and doctor’s office. I’d be interested to know if anyone has tried Qulipta? Is anyone else interested in trying Qulipta? 💊

#Qulipta #Atogepant #CGRP #OrthostaticHypotension #MigraineTreatment #MigrainePrevention #KetamineInfusion #BotoxforMigraine #Botox #MigraineProblems #MigraineLife #ChronicIllness #ChronicPain #Spoonie #ButYouDontLookSick #IntractableMigraine #ChronicMigraine #MigraineDisease #MigraineAwareness #Migraineur #MigraineCommunity #Advocate #NotJustAHeadache #MigraineSupport #Anxiety #POTS #Dysautonomia #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior

SPG BLOCKS. I've been getting SPG Blocks as an acu

SPG BLOCKS. I've been getting SPG Blocks as an acute and preventive treatment once or twice a month for the last thirteen months. That's at least 26 SPG Blocks.

Yesterday my doctor was talking about all the conditions he's treated in the Neuro ER with SPG blocks- migraine attacks, cluster headaches, trigeminal neuralgia, severe headaches after spinal taps and epidurals, and more.

Since starting SPG Blocks, I haven't had the severe sinus pain that I usually have. After years of struggling with debilitating sinus pain, I got a second opinion from an ENT who told me that my sinus pain was most likely migraine involving the trigeminal nerve. The first time I talked to my doctor, he said that SPG Blocks help numb the trigeminal nerve, and he was right! I no longer have the “Is it a sinus infection or a migraine?” pain.

SPG blocks are really simple. I'm the kind of person who gets anxious and breaks out in a rash over the smallest things, so I wouldn't lead you astray. You lay down with your head tilted back. Then, a thin catheter (a SphenoCath) is inserted into your nose and into the proper position, and Lidocaine is injected. You will be instructed to continue laying down with your head tilted back for another 5-7 minutes so the Lidocaine can fully drip over the nerves. Signs that the block was successful are eyes watering and cheeks flushing. Ask for a tissue before you begin if you're not offered one.

I wanted to share what has helped me in case it might help someone else. Does your doctor offer SPG Blocks? Has anyone else tried SPG Blocks? Have they helped you? 👃🏻

📷: me post SPG Block
📷: SPG Block illustration via Miami Community Newspapers
📷: nerve illustration via ACEP Now
#SPGBlock #SPGNerveBlock #MigraineTreatment #MigrainePrevention #MigraineRelief #Migraine #ClusterHeadaches #TrigeminalNeuralgia #SinusHeadache #MigraineLife #ChronicIllness #ChronicPain #Spoonie #ButYouDontLookSick #IntractableMigraine #ChronicMigraine #MigraineDisease #MigraineAwareness #Migraineur #MigraineCommunity #Advocate #NotJustAHeadache #MigraineSupport #Anxiety #Fibromyalgia #ChronicSinusitis #ChronicFatigue #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior

Hallie and I participated in the Philadelphia Mile

Hallie and I participated in the Philadelphia Miles For Migraine by taking a walk around our neighborhood. I’ve been enjoying incorporating more movement into my daily routine, and getting to do it with my babies makes it even more enjoyable.

Until there is a cure. For all my fellow Migraine Warriors. We are in this together. 💟 🧠

#MilesForMigraine #MilesForMigrainePhiladelphia #Goldendoodle #FurMama #FurBaby #DogMom #MigraineLife #ChronicIllness #ChronicPain #Spoonie #ButYouDontLookSick #IntractableMigraine #ChronicMigraine #ReboundHeadaches #Migraine #MigraineDisease #MigraineAwareness #MigraineSupport #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Anxiety #Migraineur #Advocate #NotJustAHeadache

It's officially official. My blood test results sh

It's officially official. My blood test results showed I have acute and chronic Lyme disease as well as three Lyme co-infections. I've been learning about each infection and each infection’s symptoms. Pretty much all of my symptoms are explained by Lyme and the co-infections. Even the difficult to tackle migraine attacks that are located in my forehead. It's a relief to know *why* I have all these medical problems.

I got to pick which symptoms bother me the most, and we are tackling that specific infection first. I'm starting treatment ASAP, no antibiotics, thankfully.

If you haven't heard, we got the best news yesterday. Hallie Bear’s tumors are both benign with clear margins, so they are unlikely to come back. The tumor that exhibited suspicious cells was a mass of hair follicles. I'll be hugging her for many more years to come. I'm so happy! 🎉

#Lyme #LymeWarrior #AcuteLyme #ChronicLyme #LymeDisease #FurMama #FurBaby #DogMom #MigraineLife #ChronicLife #ThisIsChronicIllness #ChronicIllness #Spoonie #InvisibleIllness #ButYouDontLookSick #IntractableMigraine #ChronicMigraine #Migraine #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #CFS #ME #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Anxiety #Migraineur

We've had dogs all my life, but Hallie is the firs

We've had dogs all my life, but Hallie is the first dog I got to help raise from a puppy to an adult. I hope she knows how much I love her. That I would happily take a bullet for her, except she would beat me to the punch. That she's the best dog we’ve ever had (the other fur kids would agree). I hope we get many more years of tippy tappy toes, dribbly chins, and paw requests for more pets. I love you endlessly, Hallie Bear. 💕🐶🙏🏻

#Goldendoodle #GoldendoodlesOfInstagram #DogMom #FurMama #FurBaby #DogMomLife #ChronicIllness #Spoonie #InvisibleIllness #ButYouDontLookSick #IntractableMigraine #ChronicMigraine #Migraine #MigraineSupport #Fibromyalgia #ChronicSinusitis #IBS #ChronicFatigue #CFS #ME #Endometriosis #MigraineWarrior #ChronicIllnessWarrior #ChronicPainWarrior #Health #Anxiety #Migraineur #Lyme #ChronicLyme #LymeWarrior

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